Feds Look To Make Health Care More Accessible - Disability Scoop

People with disabilities have long complained of inequities at the doctor’s office due to everything from inaccessible equipment to the physicians themselves. Now, the federal government is taking steps toward leveling the playing field.

Under new standards implemented Monday by the U.S. Department of Health and Human Services, most government health surveys will now be required to collect more detailed information about race, ethnicity, sex, primary language and disability status.

The move, which was mandated under the 2010 health care reform law, is an effort to better understand differences in the quality of health care that people receive. Moreover, health officials say that better data will enable them to identify problems and improve care.

“It is our job to get a better understanding of why disparities occur and how to eliminate them,” Health and Human Services Secretary Kathleen Sebelius said in announcing the new effort. “Today, through these new standards, we are providing a new set of powerful tools to help us achieve our vision of a nation free of disparities in health and health care.”

3 responses
"This news is a triumph of hope over experience." I am very thankful, as I am sure many others with disabilities will agree. As an individual with a rare, chronic disabling condition with multiple co-morbidities, I don't want to recall the number of times that I simply shook my head after completing a survey or filling out a form. "They don't get it: They don't know how to get it; Do they really want to know?" I'd think. It is a matter of fundamental fairness. If the right questions are not asked, we don't have an opportunity to be heard.

<sigh>

They think they can treat personal experience like an object out there that they can study like they would a species of bug. People with personal experience have to be at the policy table, but policy makers don't know how to support them to successfully contribute real genuine deep experience. Worst of all, they don't really think deep involvement is necessary except for political purposes.
Norm, I was one of them. B4. It would do me just fine to sit down and help them understand. Many of us are not objects, they don't even realize we can survive in our situations until we show them the surgeon's report or some other legitimate proof. We know that our voices aren't proof because we are not MDs an DOs. Eventually I find a treatment provider willing to listen for real....and them I end up teaching them about how my body manages. Others think people with 'X' diagnosis are all alike. This just isn't so.

Hey, we're a drag on the economy. I get that. On the other hand, this is not always necessary. With a bit of flexibility here or there, we want to participate.

Invalid (n) does not equal invalid.(adj).