Language shows the degree of oppression that people with Moebius Syndrome experience, but the concepts are great.
These two forces are coming together to drive forward this trend of peer-to-peer health care. On the one hand we have the availability of social tools and on the other hand we have the motivation, especially among people living with chronic conditions, to connect with each other.
Pew Internet research shows that one in five internet users have gone online to find others who might have health concerns similar to theirs.
That percentage is even higher – 1 in 4 – among those living with chronic disease and caregivers.
The tools are in place. The culture is shifting to expect that people have access to information and each other. There is mounting evidence that connecting patients with each other and with their data can have a positive effect on health outcomes.
But we are still at the early adoption stages in the general population.