I just got back from the conference in Las Vegas that was put on by the National Ataxia Foundation (NAF). I wish I could say that I go to this conference every year, but I don’t. I go every two or three years and always leave thinking that I should go more often.
There are about 40 types of ataxia, so one of the most valuable sessions is called “Birds of a Feather,” where attendees get together with others who have the same type of ataxia. I have spinocerebellar ataxia, type I (SCA1). This is a great opportunity to find out what research is being done and what they have learned recently about that specific disability type.