http://networkedblogs.com/WHvYd
I’m speaking on behalf of Not Dead Yet, and requesting NCD’s leadership to help us address civil rights violations that people with disabilities encounter when third parties make decisions without our consent to withhold medical treatment that we need to survive. These decisions are often made with the involvement and approval of hospital ethics consultants and ethics committees.
In fact, this week, Not Dead Yet is joining the Autistic Self Advocacy Network in a friend of the court brief in a Wisconsin case in which a 13-year-old boy with intellectual disabilities was denied routine care for treatable pneumonia and died when his parents followed the recommendations of Dr. Norman Fost after he provided an ethics consultation, recommendations that, according to the Wisconsin protection and advocacy agency, violated state law.