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NIH Director Francis S. Collins said in an interview that medicine “desperately needs some new ideas” in the fight against the syndrome and the closely related neurological disorder myalgic encephalomyelitis. At the moment, there is no test, cause or treatment for the condition, which causes overwhelming, often disabling fatigue in more than a quarter of the people who have the disorder.
“There’s something going on here, and we ought to be able to come up with an answer with the tools we have,” Collins said.
Collins said the agency will move forward on two fronts. It will launch research at the NIH Clinical Center to intensively study a small number of individuals who have the disorder and will revive a working group focused on encouraging more research on the disorder outside of NIH. But no budget for the efforts has been developed yet, Collins said.