Inclusive Livable Communities for People with Psychiatric Disabilities

Table of Contents

Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/
Change: http://prosynergypsc.blogspot.com/

Justice O'Connor addresses full house at Alzheimer's hearing

The Senate Special Committee on Aging played host to two high-profile witnesses this week at a hearing on Alzheimer's that drew an enormous crowd.

Former Speaker of the House Newt Gingrich and former Supreme Court Justice Sandra Day O'Connor, spoke before the committee. O'Connor shared her experience as a caregiver to her husband, John, who was diagnosed with Alzheimer's in 1990. She left the court as a result of his illness. The packed house paid close attention to all the witness' testimony, but was especially rapt by Justice O'Connor, according to National Public Radio.

She called for the expansion of clinical and research efforts to improve diagnosis and treatment of Alzheimer's; emphasizing prevention and early diagnosis; open communication between researchers in real time, as opposed to waiting months for studies to be published; a renewed national commitment to public investment in developing new treatments; and improved support for those with Alzheimer's and their caregivers.

"I don't believe I've ever witnessed as many people at a hearing in the five, six years that I've been in the United States Senate," said Senator Elizabeth Dole (R-NC) of the proceedings.

Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/
Change: http://prosynergypsc.blogspot.com/

Explaining the Care Gap

f you need someone to understand the urgency of the growing care gap in long-term care, you might want to pass on a copy of Occupational Projections for Direct-Care Workers 2006-2016.

“Our analysis suggests that demand for direct-care workers over the next decade, particularly in home- and community based settings, will continue to outpace supply dramatically-unless policymakers and employers work together to make these jobs competitively attractive compared to other occupations,” says the six-page fact sheet by PHI Director of Policy Research Dorie Seavey.

Short text blocks and charts like the ones reproduced here interpret U.S. Bureau of Labor Statistics data in often striking ways. For instance, did you know the U.S. is expected to need a million additional direct-care workers, for a total of 4 million, by 2016? Or that direct-care workers will outnumber teachers from kindergarten through high school combined (3.8 million), fast food & counter workers (3.5 million), and cashiers (3.4 million)?

That additional million workers represents an increase of 34 percent in just one decade, the fact sheet points out, and we can’t count on finding all those people in the usual pool of workers - women aged 25 to 54 - since that pool is expected to increase by less than 1 percent between 2006 and 2016.

Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/
Change: http://prosynergypsc.blogspot.com/

Center For Medicare Advocacy Issues New Report On Nursing Home Decisions

Nursing home decisions issued by the Department of Health and Human Services' Departmental Appeals Board (DAB) in 2007 highlight serious failures in care that cause residents to suffer unnecessary pain, injury, trauma, and death. "Despite the serious deficiencies reflected by these cases, the federal enforcement response is usually modest, at best," said Toby S. Edelman, Senior Policy Attorney with the Center for Medicare Advocacy and author of the just-released report,, an analysis of nursing home enforcement decisions issued by the DAB. "The federal government imposes only minor fines for these deficiencies," she continued, citing a case where a trivial $4050 fine was imposed when a resident strangled to death on her bedrail, after having fallen out of bed numerous times and been found caught by the bedrail in the same way a week before.

The Center for Medicare Advocacy's study of the 85 decisions is the first study ever made of the administrative appeals filed by nursing homes when federal remedies are actually imposed against them for poor care. "The study shows not only that the problems in care are serious and that penalties are modest, but also that facilities choose to appeal these enforcement actions through the administrative appeals process. Almost always, the facilities lose their cases," Edelman said. The government won 66 of the 71 cases that reached the merits of the appeals - a 93% success rate.

Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/
Change: http://prosynergypsc.blogspot.com/

Serious Deficiencies in Nursing Homes Are Often Missed, Report Says

Image via WikipediaNursing home inspectors routinely overlook or minimize problems that pose a serious, immediate threat to patients, Congressional investigators say in a new report.

In the report, to be issued on Thursday, the investigators, from the Government Accountability Office, say they have found widespread “understatement of deficiencies,” including malnutrition, severe bedsores, overuse of prescription medications and abuse of nursing home residents.

Nursing homes are typically inspected once a year by state employees working under contract with the federal government, which sets stringent standards. Federal officials try to validate the work of state inspectors by accompanying them or doing follow-up surveys within a few weeks.

The accountability office found that state employees had missed at least one serious deficiency in 15 percent of the inspections checked by federal officials. In nine states, inspectors missed serious problems in more than 25 percent of the surveys analyzed from 2002 to 2007.

The nine states most likely to miss serious deficiencies were Alabama, Arizona, Missouri, New Mexico, Oklahoma, South Carolina, South Dakota, Tennessee and Wyoming, the report said.

Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/
Change: http://prosynergypsc.blogspot.com/

Elder Justice Act

To amend the Social Security Act to enhance the social security of the Nation by ensuring adequate public-private infrastructure and to resolve to prevent, detect, treat, intervene in, and prosecute elder abuse, neglect, and exploitation, and for other purposes.

  • Other Bill Titles


  • Official: To amend the Social Security Act to enhance the social security of the Nation by ensuring adequate public-private infrastructure and to resolve to prevent, detect, treat, intervene in, and prosecute elder abuse, neglect, and exploitation, and for other purposes. as introduced.
  • Short: Elder Justice Act as introduced.
3/29/2007--Introduced.
Elder Justice Act - Amends the Social Security Act (SSA) to establish an Elder Justice program under title XX (Block Grants to States for Social Services). Establishes within the Office of the Secretary of Health and Human Services (HHS) an Elder Justice Coordina more...

Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/
Change: http://prosynergypsc.blogspot.com/

End-Stage Dementia Patients Deserve The Same Access To Palliative Care As People With Cancer

There is an urgent need to improve end-of-life care for older people in the final stages of dementia, according to an international review published in the May issue of Journal of Clinical Nursing.

"We must act now to stop people with dementia from suffering from protracted, potentially uncomfortable and undignified deaths" says Jan Draper, Professor of Nursing for The Open University, UK.

"The management of dementia is becoming a major international public health concern because people are living longer which means that more people are likely to develop this disease."

Professor Draper teamed up with Deborah Birch, a Clinical Nurse Specialist working with older people in Lincoln,UK, to review 10 years of published research. They carried out a detailed analysis of 29 studies, from the USA, UK, Canada, Israel, Switzerland, Ireland, the Netherlands, Sweden and Finland.

"Our review has reinforced the importance of providing appropriate palliative care to individuals suffering from end-stage dementia and clearly identified some of the barriers to extending such provision" says Professor Draper.

"These include concerns that such an expansion might lead to skills and funding shortages and, in turn, compromise the ability of existing palliative care teams to provide care to cancer patients, who tend to be the main recipients of this kind of care.

"We believe that clinicians and patient groups caring for patients with advanced dementia need to work together with specialist palliative care providers and health commissioners to develop, fund and evaluate appropriate cost-effective services that meet the needs of both patients and their families.


Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/
Change: http://prosynergypsc.blogspot.com/

National Long Term Care Leaders to Release New Data, Discuss Negative National Economic, Jobs Impact

/PRNewswire-USNewswire/ -- The leaders of the American Health Care Association (AHCA) and Alliance for Quality Nursing Home Care will conduct a media conference call to release and comment on a new study from The Lewin Group outlining the negative impact to the U.S. economy resulting from the Bush Administration's recently-announced cut of $770 million to Medicare-financed nursing home care for FY 2009, on

Tuesday, May 13, 2008

11 am EDT

Dial in (800) 762-6067

The new analysis will also quantify how the Medicare cuts, announced last week by the Centers for Medicare and Medicaid Services (CMS), will harm the U.S. jobs base and the ability of federal and state governments to generate revenue for key state and national priorities. Speakers will include:

Also to be released is new state by state data from AHCA indicating the 10 hardest-hit states by Medicare cuts to in nursing home care resulting from the $770 million FY 2009 funding reduction.

To reserve a place on the call, please contact Amy Weiss (Amy@pointblankpa.com) 202-203-0448 or Rebecca Reid 410-267-1128 (Reidconsulting@comcast.net).

-- Alan Rosenbloom, President of the Alliance for Quality Nursing Home Care -- Bruce Yarwood, President and CEO of the AHCA -- Al Dobson, Consultant, The Lewin Group, and -- Tony Marshall, Reimbursement Director for the Florida Health Care Association

SOURCE The Alliance for Quality Nursing Home Care

Source :PR Newswire

Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/
Change: http://prosynergypsc.blogspot.com/

Caregiving is Women’s Work

Caregiving is women’s work.

It is with that simple statement in mind that I went to the Raising Women’s Voices Conference last month, sponsored by the Avery Institute, Merger Watch, and the National Women’s Health Network.

I was invited to participate on the opening plenary panel to discuss voices that are traditionally left out of health care reform discussions. I talked about direct-care workers — and about Health Care for Health Care Workers and the broader work of PHI.

The conference brought together women’s health advocates, providers, and women in general to talk about health care issues and shape a women’s agenda for health care reform. There were the usual PowerPoint presentations and policy recommendations, but the way the organizers encouraged presenters to tell our stories made it clear from the start that this was no ordinary conference. Raising Women’s Voices lived up to its name, honoring the power of women’s voices and experiences as consumers and providers.

In my day-to-day work talking with policymakers, I have to show lots of facts and figures about direct-care workers not having health insurance and figure out how to “make the case” that this issue matters. At this conference, people listened intently when I opened my presentation with the story of Iya’ Negra, a direct-care worker in Maine. Iya’Negra was diagnosed with fast-growing fibroid tumors after she was kicked by a consumer with Alzheimer’s and the pain from the kicking did not subside. Because she had no health insurance, her health problem turned into a crisis for her whole family.

Sure, the fact that one in four direct-care workers is uninsured was a new and shocking statistic to many at the conference, but what struck them most was how that issue impacts the day-to-day lives of workers, the consumers they assist, and their families.