Health and Disability

From 1997 to 2003, Illinois was spending approximately 80% of its long-term care budget on nursing homes and institutional care and was facing significant challenges to its long-term care delivery and the need to rebalance toward community-based supports for people with disabilities. A case-based program evaluation was done to analyze Moving Out of the Nursing Home to the Community, a community- based participatory research (CBPR) project. The Chicago-based project documented the experiences and concerns of 200 disabled people attempting to transition out of nursing homes to least restrictive community living, actively involving participants in an empowerment and systems and policy change program. The authors describe the partnership between the University of Illinois at Chicago and two centers for independent living; the project's research, policy-related goals, and activities; and the outcomes realized. Barriers and facilitating factors to long-term care systems change are described, as are implications for other CBPR partnerships focused on disability public policy. Keywords: community-based participatory research; disability policy; long- term care policy; community living; nursing homes; community integration; community participation.  More...

Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/

Highlights:

1.  In 2007, the average number of registered nurses hours per resident
was 0.6 hours - a little more than a half an hour per resident.  This
represents a 14% decline between 2001 and 2007.


2.  There was a 7% increase of residents with dementia (to 45.6% of the
total residents) and a 33% increase of residents with other psychiatric
diagnoses (21.4% of total residents).



3.  The good news is that fewer people were either in bed or physical
restraints.  The bad news is that the form of restraints has shifted to
"chair bound."  56% of all residents were chair bound.



4.  More than 94,000 residents (nearly 7% of the entire nursing home
population) have pressure sores.



5.  More than 114,600 "deficiencies" were issued for violations of federal
regulations and requirements.  There was an average of 7.5 deficiency
violations per nursing facility in 2007.  UCSF noted that there was a wide
range in the average number of deficiencies, suggesting that state
enforcement varies widely.



and much more.....

Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/

Most older adults who need assistance depend on family and friends as their only source of help. And because social workers and nurses are at the forefront of supporting family caregivers, and in order to better prepare professionals in these fields, the American Journal of Nursing, the AARP Foundation, the Council on Social Work Education, the Family Caregiver Alliance; and the Rutgers Center for State Health Policy hosted an invitational symposium and produced this report. Both were made possible by funding from the John A. Hartford Foundation and the Jacob and Valeria Langeloth Foundation.

Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/

Tom Olin's Photos

Wednesday, Late night arrestees return to DUH City and early morning visits to the Hill.
Tuesday, ADAPT takes the message to Congress. Photos from Skip Smith of Parsons Kansas.
Monday, Building DUHcity and McCain's office.
Sunday, ADAPT prepares for Action.

Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/

Action at John McCain's Office
Eleven ADAPT activists are arrested attempting to get John McCain to endorse the ADAPT housing platform.
Housing Crisis
Bob Liston explains how the lack of affordable, accessible and integrated housing impacts people with disabilities.
HUD's History with ADAPT
Stephanie Thomas gives a brief summary of ADAPT actions to keep affordable, accessible and integrated housing on HUD's radar. [Link to YouTube]

A Ben Petrus Video
Full video of our ADAPT action in Virginia.

Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/

As of this writing, DUH City Times is struggling under the impediment of having most of our reporters under arrest!  More..

Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/

Police Arrest 10 Protestors
ADAPT, a disability rights group, protests at the McCain Campaign headquarters in Arlington.
http://www.<wbr></wbr>connectionnewspapers.com/<wbr></wbr>article.asp?article=319548&<wbr></wbr>paper=68&cat=104 
By David Schultz/The Connection
Tuesday, September 16, 2008

TEN PEOPLE were arrested earlier this week at the Arlin gton campaign office of Republican presidential candidate John McCain when a group of protesters gained entry to the office and refused to leave.

At approximately 1:45 p.m. on Monday afternoon, more than 40 police officers responded to a call that protestors had gained entrance to the McCain Campaign's office in Arlington, located near the Crystal City Metro Station on South Clark Street.

Randy Alexander of Memphis, Tenn., Daniese McMullin-Powell of Newark, Del., Scott Heinzmann of Livonia, Mich., Nancy Navarro of El Paso, Tex., Eileen Sable of Philadelphia, Penn., Michael McCarty of Boulder, Colo., Joyce Combs of West Allis, Wisc. and Kelly Casillas of Baxter Spring, Kan. were arrested inside the McCain office and charged with trespassing. Nancy Salandra and Stephen Gold of Philadelphia, Penn. were arrested outside of the office and charged with disorderly conduct. All ten were released on a summons to appear in court.

Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/

WASHINGTON — Congress gave final approval on Wednesday to a major civil rights bill, expanding protections for people with disabilities and overturning several recent Supreme Court decisions.
The voice vote in the House, following Senate passage by unanimous consent last week, clears the bill for President Bush.
The White House said Mr. Bush would sign the bill, just as his father signed the original Americans With Disabilities Act in 1990.
The bill expands the definition of disability and makes it easier for workers to prove discrimination. It explicitly rejects the strict standards used by the Supreme Court to determine who is disabled.

Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/

ADAPT Challenges HUD, Democrats, McCain on Disability/Housing Economic Crisis







Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/

Washington, D.C.---From their base at "DUH City", groups of ADAPT activists fanned out on the Hill to hit congressional leaders who have responsibility to help solve the housing crisis for low income people with disabilities. Visits to the offices of Rep. Barney Frank (D, MA), a longtime leader on housing issues, and Senators Chris Dodd (D, CT) and Richard Shelby (R, AL), the Chair and ranking Member of the Senate Committee on Banking, Housing and Urban Affairs resulted in a total of 50 arrests.

"Our first stop was to see Rep. Barney Frank," said Diane Coleman of ADAPT in Rochester, New York. "ADAPT
 has been in talks with him over the past year, and early on he told us in no uncertain terms that he could get 500 housing vouchers from HUD that would be targeted to free people with disabilities who live in nursing homes and other institutions. He repeated that promise for months, and we kept trusting his word, and then one day he suddenly says he can't help us. We were also working with him to get funding that pays for segregated housing redirected to support integrated housing and more vouchers. Sen. Frank arranged a hearing on this funding, and not only did he not invite any people with disabilities to testify, he didn't even notify us about the hearing. So, today, we decided to confront him on his broken promises and bad faith."

Shortly after 13 ADAPT members entered Franks' office, he ordered staff to have them arrested, refusing to even discuss the ADAPT concerns, or strategies to address the housing crisis for low income people with disabilities trapped in institutions for lack of affordable, accessible, integrated housing.

ADAPT went to the offices of Dodd and Shelby because HUD and housing fall under the purview of their committee. Sen. Shelby declined to work with ADAPT saying, "I don't help people who can't help themselves." There were 19 arrests made in Shelby's office. An aide to Sen. Dodd spoke with ADAPT, but declined to put her remarks on paper after indicating she might be willing to do so. ADAPT conti
nued to wait for the written statement, and eventually nearly 25 people were arrested.

"The TV is full of news about the bank crisis, and the mortgage crisis, and the need for candidates to appeal to middle income people," said Cassie James, Philadelphia ADAPT organizer. "Meanwhile, people who live on disability benefits, and people who are trapped in nursing homes because of no housing are being held hostage while the government bails everyone else out. Rent has gone up so much, it's higher than many monthly disability benefits. Not only do us younger people with disabilities need affordable, accessible housing, older people need it, too. This is a crisis, and we need help to solve it."

ADAPT has been in D.C. since September 13, erecting DUH City, a tent city, on the plaza outside HUD headquarters to bring attention to the situation of  the people who have been ignored in this election year- low income people with disabilities. The crises with the economy and housing extend well beyond the middle class, but the Presidential candidates and their parties have seemingly forgotten that fact. Not so, ADAPT.

                              <wbr></wbr>                              <wbr></wbr>                  ###Washington, D.C.---From their base at "DUH City", groups of ADAPT activists fanned out on the Hill to hit congressional leaders who have responsibility to help solve the housing crisis for low income people with disabilities. Visits to the offices of Rep. Barney Frank (D, MA), a longtime leader on housing issues, and Senators Chris Dodd (D, CT) and Richard Shelby (R, AL), the Chair and ranking Member of the Senate Committee on Banking, Housing and Urban Affairs resulted in a total of 50 arrests.

"Our first stop was to see Rep. Barney Frank," said Diane Coleman of ADAPT in Rochester, New York. "ADAPT
 has been in talks with him over the past year, and early on he told us in no uncertain terms that he could get 500 housing vouchers from HUD that would be targeted to free people with disabilities who live in nursing homes and other institutions. He repeated that promise for months, and we kept trusting his word, and then one day he suddenly says he can't help us. We were also working with him to get funding that pays for segregated housing redirected to support integrated housing and more vouchers. Sen. Frank arranged a hearing on this funding, and not only did he not invite any people with disabilities to testify, he didn't even notify us about the hearing. So, today, we decided to confront him on his broken promises and bad faith."

Shortly after 13 ADAPT members entered Franks' office, he ordered staff to have them arrested, refusing to even discuss the ADAPT concerns, or strategies to address the housing crisis for low income people with disabilities trapped in institutions for lack of affordable, accessible, integrated housing.

ADAPT went to the offices of Dodd and Shelby because HUD and housing fall under the purview of their committee. Sen. Shelby declined to work with ADAPT saying, "I don't help people who can't help themselves." There were 19 arrests made in Shelby's office. An aide to Sen. Dodd spoke with ADAPT, but declined to put her remarks on paper after indicating she might be willing to do so. ADAPT conti
nued to wait for the written statement, and eventually nearly 25 people were arrested.

"The TV is full of news about the bank crisis, and the mortgage crisis, and the need for candidates to appeal to middle income people," said Cassie James, Philadelphia ADAPT organizer. "Meanwhile, people who live on disability benefits, and people who are trapped in nursing homes because of no housing are being held hostage while the government bails everyone else out. Rent has gone up so much, it's higher than many monthly disability benefits. Not only do us younger people with disabilities need affordable, accessible housing, older people need it, too. This is a crisis, and we need help to solve it."

ADAPT has been in D.C. since September 13, erecting DUH City, a tent city, on the plaza outside HUD headquarters to bring attention to the situation of  the people who have been ignored in this election year- low income people with disabilities. The crises with the economy and housing extend well beyond the middle class, but the Presidential candidates and their parties have seemingly forgotten that fact. Not so, ADAPT.

                              <wbr></wbr>                              <wbr></wbr>                  ###Washington, D.C.---From their base at "DUH City", groups of ADAPT activists fanned out on the Hill to hit congressional leaders who have responsibility to help solve the housing crisis for low income people with disabilities. Visits to the offices of Rep. Barney Frank (D, MA), a longtime leader on housing issues, and Senators Chris Dodd (D, CT) and Richard Shelby (R, AL), the Chair and ranking Member of the Senate Committee on Banking, Housing and Urban Affairs resulted in a total of 50 arrests.

"Our first stop was to see Rep. Barney Frank," said Diane Coleman of ADAPT in Rochester, New York. "ADAPT
 has been in talks with him over the past year, and early on he told us in no uncertain terms that he could get 500 housing vouchers from HUD that would be targeted to free people with disabilities who live in nursing homes and other institutions. He repeated that promise for months, and we kept trusting his word, and then one day he suddenly says he can't help us. We were also working with him to get funding that pays for segregated housing redirected to support integrated housing and more vouchers. Sen. Frank arranged a hearing on this funding, and not only did he not invite any people with disabilities to testify, he didn't even notify us about the hearing. So, today, we decided to confront him on his broken promises and bad faith."

Shortly after 13 ADAPT members entered Franks' office, he ordered staff to have them arrested, refusing to even discuss the ADAPT concerns, or strategies to address the housing crisis for low income people with disabilities trapped in institutions for lack of affordable, accessible, integrated housing.

ADAPT went to the offices of Dodd and Shelby because HUD and housing fall under the purview of their committee. Sen. Shelby declined to work with ADAPT saying, "I don't help people who can't help themselves." There were 19 arrests made in Shelby's office. An aide to Sen. Dodd spoke with ADAPT, but declined to put her remarks on paper after indicating she might be willing to do so. ADAPT conti
nued to wait for the written statement, and eventually nearly 25 people were arrested.

"The TV is full of news about the bank crisis, and the mortgage crisis, and the need for candidates to appeal to middle income people," said Cassie James, Philadelphia ADAPT organizer. "Meanwhile, people who live on disability benefits, and people who are trapped in nursing homes because of no housing are being held hostage while the government bails everyone else out. Rent has gone up so much, it's higher than many monthly disability benefits. Not only do us younger people with disabilities need affordable, accessible housing, older people need it, too. This is a crisis, and we need help to solve it."

ADAPT has been in D.C. since September 13, erecting DUH City, a tent city, on the plaza outside HUD headquarters to bring attention to the situation of  the people who have been ignored in this election year- low income people with disabilities. The crises with the economy and housing extend well beyond the middle class, but the Presidential candidates and their parties have seemingly forgotten that fact. Not so, ADAPT.

                              <wbr></wbr>                              <wbr></wbr>                  ###
Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/