Why CMS Should Reward Agencies for ‘Family Centered’ Home Health

https://goo.gl/MQmpHS

Recognizing and supporting the role of family caregivers may be a way home health agencies can strengthen the current concerning state of care for older adults in the United States, according to a recent report from The National Academics of Sciences, Engineering and Medicine. This should include revising Medicare to provide more reimbursement for involving family caregivers, the report authors assert.

The 297-page report, Families Caring for an Aging America, was compiled over the last two years and released today with support from 15 sponsors by an expert committee from The National Academies of Sciences, Engineering and Medicine.

A larger emphasis needs to be put on family caregivers, whether older adults are receiving other services like home health care or not, the report explains. If caregivers are not recognized, there is a larger risk to the well-being of elders and their families.

One of the most recent regulations in this area is being pushed by the Centers for Medicare & Medicaid Services (CMS), which is finalizing a set of proposed revisions to Medicare regulations around the home health benefit.

The revisions that are proposed would require home health agencies to identify the care recipient’s primary family caregiver and then develop the Medicare beneficiary’s plan of care in partnerships with the older adult as well as the caregiver. The plan could include education and training for the caregiver specific to the needs of their loved one, according to the report.


Characteristic chemical signature for chronic fatigue syndrome identified

This is strangely amazing....

https://goo.gl/BfgjGB

Chronic fatigue syndrome (CFS) is a mysterious and maddening condition, with no cure or known cause. But researchers, using a variety of techniques to identify and assess targeted metabolites in blood plasma, have identified a characteristic chemical signature for the debilitating ailment and an unexpected underlying biology: It is similar to the state of dauer, and other hypometabolic syndromes like caloric restriction, diapause and hibernation.

Dauer is the German word for persistence or long-lived. It is a type of stasis in the development in some invertebrates that is prompted by harsh environmental conditions. The findings are published online in the August 29 issue of PNAS.

"CFS is a very challenging disease," said first author Robert K. Naviaux, MD, PhD, professor of medicine, pediatrics and pathology and director of the Mitochondrial and Metabolic Disease Center at UC San Diego School of Medicine. "It affects multiple systems of the body. Symptoms vary and are common to many other diseases. There is no diagnostic laboratory test. Patients may spend tens of thousands of dollars and years trying to get a correct diagnosis."

"Despite the heterogeneity of CFS, the diversity of factors that lead to this condition, our findings show that the cellular metabolic response is the same in patients," said Naviaux. "And interestingly, it's chemically similar to the dauer state you see in some organisms, which kicks in when environmental stresses trigger a slow-down in metabolism to permit survival under conditions that might otherwise cause cell death. In CFS, this slow-down comes at the cost of long-term pain and disability."

Naviaux said the findings show that CFS possesses an objectively identifiable chemical signature in both men and women and that targeted metabolomics, which provide direct small molecule information, can provide actionable treatment information. Only 25 percent of the metabolite disturbances found in each person were needed for the diagnosis of CFS. Roughly 75 percent of abnormalities were unique to each individual, which Naviaux said is useful in guiding personalized treatment.


Welcome to HEALTHCARE STORIES

https://goo.gl/eB1ZcV

Healthcare Stories is a new video advocacy tool in DREDF’s ongoing campaign for healthcare justice for people with disabilities. We are deeply grateful to The Special Hope Foundation and The Manuel D. and Rhoda Mayerson Foundation for their visionary support of the project, which began collecting stories in 2011.

Our stories, dispatches from the front lines of health care, add an essential human dimension to a large body of research showing that people with disabilities experience both health and healthcare disparities and face specific, persistent barriers to care. We know firsthand that poor health care inevitably affects the quality and length of our lives as well as our productivity, autonomy and independence. Because we experience unequal healthcare every day, out of necessity we have become experts in what must be done to remove barriers and increase access to the care we need. We invite you to watch the videos, meet the people behind the stories, and learn what you can do to spark change.


CMS: Avoidable hospital readmission rates have dropped in 49 states

https://goo.gl/HABm1p

New data from the Centers for Medicare & Medicaid Services finds that almost all states improved on preventable hospital readmissions between 2010 and 2015, while readmissions declined 8 percent nationwide in the same period.

Preventable readmissions dropped in 49 states and the District of Columbia, according to a CMS blog post. Vermont's rate remained the same. 

The drops aren’t small, either; according to the data, the decline exceeded 5 percent in 43 states and 10 percent in 11. Across all states, hospitals averted about 100,000 readmissions in 2015 and a projected 565,000 since 2010.

Hawaii (13.4 percent) and New Jersey (13.3) had the biggest drop in readmissions.


A better way to better health. For everyone.

http://www.healthinnovation.org/

The Center’s mission is to bring the consumer experience to the forefront of health innovation in order to deliver better care, better value and better health for every community, particularly vulnerable and historically underserved populations.

OUR WORK

The Center provides resources and expertise to ensure that patients and families, particularly the most vulnerable, have a voice at all levels of the health care delivery system — from individual care to health system design to state and national policy.





Art alleviates anxiety for people with dementia, new research finds

Art does this for everyone.....

https://goo.gl/nFW9jZ

A study commissioned by the Art Gallery of New South Wales has found viewing art creates a heightened sense of joy for people with dementia, alleviating anxiety by allowing them to stay in the moment.

The study specifically examined the gallery's art access program, which invites people living with dementia and their carers to view and discuss iconic works in the collection.

The program has been running since 2010, and was created off the back of a similar project at the Museum of Modern Art in New York.

While dementia impacts memory, emotions remain intact, and the head of learning and participation at the Art Gallery of New South Wales, Heather Whitely-Robertson, said the study found art allowed people with dementia to tap into their imagination.

"What was really striking was the observed significance of what we would call in the moment pleasure that participants were able to demonstrate in their program," she said.

Forgetfulness — 7 types of normal memory problems

http://goo.gl/EY50Fs

It's normal to forget things from time to time, and it's normal to become somewhat more forgetful as you age. But how much forgetfulness is too much? How can you tell whether your memory lapses are within the scope of normal aging or are a symptom of something more serious?

Healthy people can experience memory loss or memory distortion at any age. Some of these memory flaws become more pronounced with age, but — unless they are extreme and persistent — they are not considered indicators of Alzheimer's or other memory-impairing illnesses.

(My personal favorite...)

3. Blocking

Someone asks you a question and the answer is right on the tip of your tongue — you know that you know it, but you just can't think of it. This is perhaps the most familiar example of blocking, the temporary inability to retrieve a memory. In many cases, the barrier is a memory similar to the one you're looking for, and you retrieve the wrong one. This competing memory is so intrusive that you can't think of the memory you want.

Scientists think that memory blocks become more common with age and that they account for the trouble older people have remembering other people's names. Research shows that people are able to retrieve about half of the blocked memories within just a minute.


Early Experiences Engaging Patients Through Patient and Family Advisory Councils

https://goo.gl/iNzaOQ 

Primary care practices are increasingly asked to engage patients in improving care delivery. We report early experiences with Patient and Family Advisory Councils (PFACs) from interviews of patients and practice staff in the Comprehensive Primary Care initiative, and identify ways to improve PFACs. Patients and practice staff report PFACs help practices elicit patient feedback and, in response, improve care delivery. Nonetheless, there are areas for refinement, including recruiting more diverse patients, providing an orientation to members, overcoming reticence of some patients to raise issues, and increasing transparency by sharing progress with PFAC members and patients in the practice more generally.

Fatal Side Effects from Popular Blood Pressure Medication, Lisinopril

http://goo.gl/kNTM9S

Lisinopril is an ACE inhibitor, used to treat high blood pressure, congestive heart failure, and to improve survival after heart attack. It is sold under the brand names Prinivil and Zestril. Lisinopril has been linked to a life-threatening allergic reaction called angioedema. Users have experienced severe and fatal liver problems. When taken by pregnant women, lisinopril can cause fetal injury and death.

The following adverse events have been associated with lisinopril use:

  1. Head and neck angioedema, including fatal events
  2. Intestinal angioedema
  3. Impaired renal function
  4. Acute kidney failure
  5. Hypotension (low blood pressure)
  6. Hyperkalemia (elevated blood potassium)
  7. Liver failure
  8. Pancreatitis
  9. Birth defects and fetal death when taken by pregnant wome

Angioedema Can Be Fatal

Angioedema is one of the most dangerous reactions to lisinopril. Most patients who experience angioedema have a reaction shortly after they start taking the drug, but in some it takes months or years of taking lisinopril before a dangerous reaction occurs. Doctors and patients can easily overlook the connection between angioedema symptoms and lisinopril use.

Angioedema is swelling below the surface of the skin. It can occur around the eyes, mouth, throat, and intestines. When swelling is in the throat or tongue, it can quickly become fatal because the airway can be blocked. Those who survive may have permanent brain injuries and severe impairment due to lack of oxygen to the brain.

Update on Traumatic Brain Injury and Inflammation

Complicated information, but a good overview of current info on inflammation and TBI....
http://goo.gl/X1QI47

Inflammation was also considered to be abnormal in the brain. It is now known that there are many different kinds of inflammation, including a type stimulated by neurons as part of neuroplasticity—one definition of neuro inflammation. Recent research shows that abnormal types of inflammation with alterations in microglia and astrocytes are part of states that increase degenerative brain disease.

Now it is clear that there are types of inflammation that are helpful—fighting infection and healing tissues—and there are types of inflammation that increase damage over time. It has not been clear how various types of inflammation affect traumatic brain injury